Dear friends, Rare Disease Day is marked every year on the last day of February. The aim of celebrating this day is to raise public awareness, as well as the awareness of decision-makers, about rare diseases and their impact on the lives of patients and their families.
In order to raise awareness of the patients and the problems they face, yesterday, February 27th, the premiere of the film “Day by Day” was shown at the cinema Tuškanac.
“Day by Day” is a project of the Croatian Alliance for Rare Diseases, the umbrella organization for rare diseases in Croatia.
We were honored to attend the premiere at the cinema Tuškanac and we wish good luck to all the patients in dealing with the difficulties they must, unfortunately, face as a result of the disease, and we wish much success in the future work of the Croatian Alliance for Rare Diseases.